My Story – by “L”

In secondary school I went through a difficult time with bullying, I came down with abdominal pains which prevented me from going to school and made it difficult to eat. I saw several doctors and the pains always subsided for a while when I was reassured there wasn’t anything obviously wrong with me. I was told I most likely had Irritable Bowel Syndrome (IBS) and that anxiety could be a factor. I got some medication and the symptoms went away quite quickly. This was definitely not the last time I would have IBS. When I was at an open day at a university my friends and I were keen to attend, I recall becoming overwhelmed by panic and had to sit outside in the fresh air while my friends talked to the lecturers, finding out information about their courses. This panic, mostly about the idea for moving away from home, away from my parents for the first time was the main reason I changed my plans and went to a more local university so I could remain at home even though they did not have my preferred course.

I was referred to see a counsellor who specialised in young people. I was given Cognitive Behavioural Therapy (CBT) to learn to prevent the panic taking hold of my body, but I don’t feel that it worked. It never felt right for me. I was referred to see another counsellor for adults after a while when I became older. This counsellor talked to the psychologist and formally diagnosed me with anxiety and suggested I may have depression too. I was prescribed a Selective Serotonin Reuptake Inhibitor (SSRI) to treat the anxiety and depression, and talking to the counselling continued for a while.

I started taking the SSRI, half dosage at first for a week, then up to full dosage, when I was on the full dosage I started feeling sick. I spoke with my GP who suggested I go back on the half-dose and try increasing it more gradually. I tried this but continued feeling sick. I got fed up and stopped taking the SSRI abruptly, although the instructions advise against sudden discontinuation. Then, I spent years suffering from mysterious feeling known as SSRI Discontinuation Syndrome. SSRIs are not addictive and don’t leave you feeling any dependence on them, but if stopped abruptly they can in some cased leave patients with a non-painful but disturbing, electric-shock-like sensation in the head, sometimes referred to as “brain-zaps”, which for me happened every time I moved my eyes (probably hundreds of times a day, I once tried counting but lost track quickly). My GP did not think that this was associated with the SSRI as he had not heard of it before. I had to take along my own Internet research to show that others report the same thing with the same drug. I tried going back on a half-dose of the SSRI for a long time (which put away the brain-zaps) then coming down slowly over months (which brought them back). After trying this several times over a few years I eventually just put up with them until they went away (hopefully for good) after at least 3 months of brain-zaps, although I still get a slight tingle or discomfort in my scalp for a while occasionally which may or may not be related.

In more recent years my depression took over more than the anxiety. I went back in to counselling; this time at my university’s counselling services (when I was doing my masters degree). I had a job that I hated and spent most of my time talking about that even though I had other issues. I really wanted to also speak about my loneliness, now that I have moved out of my parents’ house and I so desperately was to start dating and find love, but have never been able to. I also felt too embarrassed to seek advice about this so only spoke about my work. My time with the counselling ran out. I lost my job due to recession (and being worthless, most of what I did at work was sit around feeling anxious) and spent a lot of time half-heartedly job seeking as a finished my masters.

Last year I had an anxiety attack and was referred by my GP to another counsellor. By the time the counselling started, my depression had taken over from my anxiety again. I never get a moments peace as they take turns on me. I have been seeing my counsellor for 3 months and haven’t gotten back around to what was making me panic. I’ve been more open and honest this time and talked about my feelings and relationships with friends, family, colleagues in a way that I did not in past counselling and feel I’ve benefited a bit from this. I could be proud of my ability to open up, but really it was killing me to the point I had to. Additionally, I often feel I’m wasting my counsellor’s time as I feel like a lost cause. Lately, I haven’t been able to do very much, even study (I’m now doing a PhD) without the anxiety or depression taking over. The IBS is still with me today and I’ve missed days and been late because of it. It can torture me alongside the anxiety all day long.

Usually I will spend Christmas at my parents’ house. I spent Christmas 2011 alone after falling out with my parents over trivial matters. I hate the holiday season. I’m just in my 20s, but I feel too old to enjoy it. I don’t get big presents anymore and I never get invited to parties (everyone who knows me either doesn’t think to invite me or know I’m too much of a misery to bother, I’d bring the mood down). It gets cold making the heating annoyingly expensive, and the distraction that is work or study stops, taking me away from people I can chat to, leaving me alone with my thoughts. New Year comes along with thoughts of planning the year ahead, and worrying about money, and of course the silly American tradition where you’re expected to kiss someone on New Year. I’ve never even had a date, so that won’t happen. The funny thing is I didn’t have too bad a time on Christmas Day. I made a deal with myself that although I was alone in my flat I’d keep smiling through Christmas Day and lying to myself, saying I’m happy, and in exchange I’d let myself be as miserable as I want on Boxing Day.

Now it’s 2012. As a skeptic, I doubt the end-of-the-world prophecies are right, but I’m not really looking forward to the future anyway. I’m back to my PhD, the anxiety and IBS is killing me again, I’m still alone, I have more expensive dental work soon, and I’ve recently lost two of my friends in separate fallings-out. I look at problems other people are having which seem objectively much worse, and they can cope just fine. I don’t understand how, and it doesn’t make me feel any better. I speak to friends who are sympathetic but after I time I feel they are probably dreading the next miserable, whiney, depressing email, text, or Facebook message from me, so I stop and hold it in, or talk to Samaritans instead.

As this is a skeptic blog, I feel like adding one final thought I may otherwise not bother with. People with mental health (MH) issues are told to remember that they are not their MH issues, they are more than that as a person, the MH issue just suppresses who they are to the world. This led me to some odd pointless philosophical ponderings. As skeptics, atheists, materialists, or whatever we tend to believe as Prof. Bruce Hood put it “you are your brain”. So how can there be more to me than this? I don’t have some kind of magical soul that’s healthy under here. I am damaged. My core personality has grown up and gained life-experience over the last 10 years at the same time I’ve had anxiety and depression. So how can they ever be disentangled? If my anxiety and depression went away tomorrow, what would my personality be like? Would I be me anymore? Low mood is a standard baseline feeling for me, if I feel happy, or content, it’s an exception, brought on by exceptional circumstances. When I act a certain way and screw up, can I blame it on the MH issues, or was that just my personality flaws? Where do I end and the MH issues begin? I don’t even know anymore or if the distinction even matters to anyone. I’m a miserable person, that’s part of my identity for anyone who’s known me for any length of time. I know I’m being overly melodramatic, but sometimes I feel like I am my depression.

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About shatteringthestigma

An open blog taking submissions from skeptics and skeptic friendly individuals on the subject of mental health.

Posted on January 25, 2012, in anxiety, Depression and tagged , , , . Bookmark the permalink. 5 Comments.

  1. This is very good, it gives a first hand account of living with mental health issues. There is still so much social stigma surrounding this issue. There also isn’t the proper help and support people need to make their lives fully functioning (unless you can afford private health care).

    I have had mental health issues since I was a young child and know how desperate and alone it can feel. We don’t want to “burden” people by talking about our problems as we’re scared they won’t want anything to do with us anymore. But, we shouldn’t have to pretend to be “normal”. Thr problem is not on our end, its society’s perception of what “normal” is. There are a huge number of people in the UK who suffer from MH issues and yet this perception of “normal” still remains the same.

  2. I know what you mean about your friends being supportive but all you can think is that they’re secretly dreading it. I think a lot of people with depression, etc worry that they are being a burden on those around them, and it not only compounds the bad feelings at the moment, but causes undue stress over time and prevents people from getting the support they need. It’s hard to convince yourself otherwise, but being able to get to that point is really helpful.

  3. Thank you for sharing this. I didn’t know other people got “brain-zaps” (and now I have a word for them!). If I miss my SSRI for even a day I get brain-zaps and it’s such a gross feeling.

    I also identified with your last paragraph. I’ve been thinking about that a lot lately, too. If I’m unable to get out of bed for 36 hours, how do I know what percentage of that is because of depression and what is maybe just me being a lazy person? My illness changes the thoughts I have and the behaviors I perform, but so does the medication – which is really me? Probably neither.

  4. I could particularly empathise with your last paragraph – I know that feeling all too well. You get asked things like: “If you weren’t depressed, what would your life be like.” and the answer is: “I don’t know, I’ve never felt anything other than this.”

    As someone who also suffered bullying which led to my depression, I think the problem is that we’ve known nothing else, it’s always been there. In order to find out what it’s like removed from that depression, we’re simply going to have to experience it for the first time. Just because we haven’t experienced it yet doesn’t mean that we won’t ever/soon.

  5. Thank you for sharing a story that so many can relate too

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